After I had some time to rest and think, I became pro-active once more. Gloria from medical records at my local Dr’s called me, to assure me that she did, indeed, send the records. I, in turn assured her that I knew it was not her fault. Since it was a holiday, no one was at the office and I need to wait for my dr. to call. I’m still waiting. She worked on having records transferred on Tuesday as well. (I will bake her a cake.)
Meanwhile: I had send an e-mail to Professor, Dr. Koebe in Wuerzburg. I’ve described what had happend and asked for his advice, as I was really worried how I would get rid of this last cancer tumor.
With efficient speed there was a reply as I checked my e-mail, first thing, yesterday morning. My heart beat a bit faster wondering whether he would say, ‘so sorry but I can’t help you. You live too far away and it’s not my jurisdiction and I wish you well’. Something like that. But, what I saw instead was his reply to their incomptence and failure to communicate. How sorry he was that I had to drive so far for practically nothing.
He offered to look at my scans and surgical records, at the slides from lung surgery, etc. He wrote, to hold off on expensive P.E.T ($8000.00) until he could view all of my stuff. Then, he wrote, ‘Marion and I are always here for you.’ This simple, caring sentence made me cry. ( Marion is Executive Secretary and a warm, caring woman who has also written uplifting and cheering notes. I was so relieved that there was someone, looking out for me.
I also received a very nice comment/e-mail from a woman, who, as it turned out lives here, in Montrose. She has video’s of alternate treatments which she offered. She is convinced that traditional medicine helped to kill her son. After a few e-mails back and forth, I am invited to her home and we’ll look at this info together. I offered to bring Apple Strudel. Through this blog, I have met the nicest people.
Since Dr. D. (Denver University) had made the remark that ‘it may now be too late to remove tumor through surgery’, I started to research that very subject. (I can’t sit home scared and chew fingernails.) Why did she say this? Because she was cranky that I did not listen to her 20 mos ago? Really small of her. I have the right to look for the best, ost gentle treatment for my immune system. I have done very well until last October, when things started to move and I took immediate action, although it was ‘conventional’ treatment option because I was scared.
I’ve found CRYOABLATION. This treatment was first used in Bejing, China, about 9 years ago. It’s a process that uses extreme cold (cryo) to remove tissue (ablation) as salvage therapy when there is no other way to get to a tumor. It is also minimally invasive. (I’ve heard that one before). It’s injected at the tumor site then substance is released which freezes the tumor and it shrivels up and is ’dead’. It only costs $26,000.00 plus air fare. Down went my excitement. But, further research showed that they also use this at Dana Faber, Harvard cancer center. My one shot to get into Harvard? I will check this out. ‘Just in case’.
I’m also thinking of sending my records to #2 Dr. in Grand Junction. Dr. Giggles had told me that she was Nr. 2 and that Dr. D. was #1. But, just like Avon, maybe Nr.2 tries harder.
Meanwhile, everyone is on hold. My son, my daughter, my friends- me. Not knowing what to do, how to do it or where?
If Professor in Germany could remove it, do I go there? Would my son come with me? (note to self: ask son.) I could but have to pay myself and who knows how much that would be? Where could I go after surgery for convalescing? It would be so lovely, if I had their insurance and could go to one of those marvelous Wellness Centers. Maybe in the Black Forest? Upper Bavaria? Of course, if it works out that I can stay near home with loving support that would be most ideal.